I am reading a book called “When Someone you Love has a Chronic Illness” – but I am reading it being the person with chronic illness.
The reason I bought the book (actually 3 of them) was because of a chat me and my fiancé had. Though I have been dealing with chronic illness for upwards of over 14 years and might be closer to 20 years with it worsening over time; it never completely dawned on me how my illness could impact others. I tell people all the time that I don’t want help, I don’t want them to feel bad for me, etc. but I guess it doesn’t work that way. When people care about us and love us, they are impacted by the chronic illness too. I guess it wasn’t something I wanted to consider because I never want the problems I have to affect those I love, care about and those around me. But it does.
After doing some research, I found a great little book called “When Someone you Love has a Chronic Illness”. In the reviews, I found many reviews from people who are the patient, the one with the health issues, and they found the book helpful. I am nearly done reading the book and have found it very helpful so far. In addition to my reading it, I gave a copy to my fiancé and my father.
Revelation #1 was that even though I am miserable sometimes and I don’t want others to be miserable (I would rather they ignore me and how I feel), it isn’t the case. They care about me and love me and they worry and sometimes feel bad, anxious, etc. And talking about it and finding ways to cope are helpful. I am sorry my health problems cause suffering in others.
Revelation #2 was that I am apparently supposed to be moving more, exercising more, etc. I say I am damned if I do and damned if I don’t. I end up in pain either way. If I do too much though, I am in trouble – and in trouble for a few days. If I don’t do enough, over a couple of days, I am also in trouble. But the point of this revelation is that if I don’t do enough, long enough, I will end up in even deeper trouble. So I gotta get moving. Not too much though.
I have found that if I wear a fitness tracker (Garmin Vivosmart 3 and 4 are my go-to’s because they also monitor stress) I can be fine getting around 5,000-7,000 steps per day. More than 7,000 can cause me pain for about a day, but if I am consistent, at getting more than 7,000, then I am okay. But if I have a few days of less than that and break the cycle, I am in trouble. If I get around or more than 10,000 I am in trouble for a few days. If I get around 12,000-13,000+ I can’t move well for several hours and then I am in trouble for days after that. So I guess finding balance is key.
With the stress of the holidays over, I can now start becoming more mindful of my exercise (which I am now realizing is important, after reading this book). Stress kind of kills me too, and so it took me a couple weeks to recover from the holidays. But I am bouncing back and just about ready to get moving.
I am thinking by the weekend I will be ready to give it a go and aim for 5,000 steps per day. Also adding in some minutes on my Gazelle elliptical and doing some weight/resistance training. My other goal would be to start doing yoga again and actively taking time to meditate. But first, I will start with the steps.