Updated: Apr 29
I got my first dose of the Moderna COVID vaccine and believe it’s helping my chronic Epstein-Barr Virus & CFS/ME.
Mono – most people have had it in their lifetime. And, usually they get it once. I have had full blown mononucleosis a minimum of three times. The first time was in second grade. The second time was the summer around 8th grade, with the third instance sometime around 2010.
The most common symptom of Mono is severely heavy fatigue. While it does present other symptoms, this is one that alerts you to get tested.
After decades of being tested for mono and the Epstein Barr Virus (the virus that causes mono) and having reactivations and new active forms of the virus presenting themselves, with symptoms, I inquired about going to Infectious Disease.
My doctor told me ID would not be able to help me and told me what I had was actually Chronic Fatigue Syndrome or Myalgic Encephalomyelitis (CFS/ME).
The researcher and medical intuitive within me knew they were connected. I have an IgG immunodeficiency that runs in my family, I have had mono a few times and have constant EBV reactivations. Through a quick search I was able to find the symptoms of CFS/ME and that I had all of them.
I knew intuitively CFS/ME and chronic EBV were one in the same medical condition. After years of this and feeling what I know intuitively, I knew there was something that could help but it would need to be something antiviral. However, doctors told me they did not want to try it and they didn’t know if it was going to work. I was told I just had to live with it.
Living with it means I am exhausted and heavily fatigued throughout the better part of the day. Additional sleep does not help and actually can make the heaviness worse. Movement, like walking, feels like I am walking through molasses or like I am walking in the sand, along the beach with heavy winds blowing towards me, against the direction I am headed. I also experience low-grade fevers and more but I was living with them.
It is important to note I also live with endometriosis, fibromyalgia, IBS, migraines, allergies, asthma, severe anxiety, mild depression, OCD, agoraphobia and more … yes, more.
On the morning of April 2nd 2021 I received my first dose of the Moderna vaccine. Being immune deficient, having asthma and being overweight according to the BMI meant I was eligible. I got the vaccine, waited 20 minutes and then left the vaccination site.
I experienced a sore arm and mild nausea. Later that evening I was able to do cleaning around the house in an abnormal way. I had more energy that evening than I had had in months, if not years. The following days I was able to do more around the house, get groceries and the like and not have as severe repercussions of said activity. Usually by 4:00pm I have trouble staying awake and by 6:00pm even worse. Trying to get things done during the day is a big challenge – but following the vaccine, none of this was happening. I had some mild fatigue from other health issues but nothing severe like before.
After a couple days passed, I had a suspicion the vaccine was helping my body fight the EBV (or CFS/ME). There was no other variable to explain this. I researched the vaccine, how it works and what it does. Then I wondered how the Epstein Barr Virus looks and it too had similar outer features to the COVID virus. (i.e. the spikey edges.) Then I created my theory.
I called Moderna to let them know my suspicion and what I thought was happening. They documented it along with the nausea.
I also found out through online research, Moderna is using a similar DNA based method and creating an EBV vaccine. This is something I would sign up for in a heartbeat. However, I don’t think it is currently in clinical trials.
It has been over one week since I got the vaccine and I am still able to do more than I have in a long time. My second dose is in a few weeks and I am truly looking forward to it.